Commitment to Action

Direct Sponsorship to Diagnose 26 Children in Hong Kong

Commitment by

Joshua Hellmann Foundation for Orphan Disease

In 2008, the Joshua Hellmann Foundation for Orphan Disease committed to provide $21,000 for the diagnosis of 26 children with orphan diseases in Hong Kong. 'Orphan Diseases' are those that do not capture the attention of the pharmaceutical industry for development of drug treatment due to their rarity. The majority have a genetic basis and occur less than once in every 10,000 people. Children with orphan diseases require early diagnosis because treatment may be required in order to prevent severe disability or death. In Hong Kong, the resources for diagnosing orphan diseases are sub-optimal. Some tests can cost up to $774 per child, a sum that many simply cannot afford. The commitment will involve the identification of such cases, as well as the provision of the capital and the tests necessary for an accurate diagnosis for these children, as well as the commencement of treatment, if possible.

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Overview
Summary

Commitment

Direct Sponsorship to Diagnose 26 Children in Hong Kong

Launched

2008

Est. Duration

6 Years

Estimated Total Value

$120,000

Region

Asia

Countries

HONG KONG

Commitment by

Joshua Hellmann Foundation for Orphan Disease